Completing our “Snowbird” season, en route to our final Florida RV campground, we stopped at a USPS office to mail a package. Another customer in line asked about my Stephen Ministry nametag. I explained that twenty years ago, I’d taken 50 hours of training to be a Christian caregiver. Now I’ve developed a website, www.yourexitstrategy.org to encourage families to start talking about their End of Life plans. I was blown away when he said, “I’ve already found the cheapest way to get rid of my body when I’m gone—I’m donating it to medical science.” Continue reading
The value of a good support team can’t be understated when facing a terminal diagnosis. A network of supportive family, friends and health care professionals is the greatest asset someone can have when coping with a terminal disease like mesothelioma cancer.
Mesothelioma is an incurable cancer caused by exposure to asbestos. The five-year survival rate is less than 10 percent, and mesothelioma life expectancy is between 12 to 21 months. However, advancements in treatment are helping people live longer and more comfortably with the disease, and rare cases do go into remission, but the vast majority diagnosed with mesothelioma will succumb to the cancer within three years. Continue reading
Doctors’ Words Influence End-of-Life Decisions Made By Patients’ Families
Making the decision to approve heroic measures to save a loved one’s life can be fraught with emotion, so anxious family members tend to turn to the doctor for guidance, according to the first study to analyze the role that doctors’ language plays in end-of-life decisions.
Researchers from the University of Pittsburgh School of Medicine conducted a novel study to investigate how a doctor’s choice of words, or how his empathy and personal experience, can impact family members’ decisions to approve or not approve cardiopulmonary resuscitation (CPR) to save a critical patient’s life. They recruited 250 people with living parents or spouses in Boston, Atlanta, New York, Los Angeles, San Francisco, Dallas, Denver and Pittsburgh.
The study participants were presented with an online survey in which they were asked to imagine a hypothetical situation: one of their loved ones was in an intensive care unit with a 40% chance of dying from sepsis, a severe bacterial infection. Some of the participants were also shown pictures of their family members or loved ones on the screen to intensify the emotional impact of the experience.
(VIDEO: New CPR Guidelines: Hands Only)
The volunteers were then confronted by a doctor, played by an actor, who held a meeting with the family member online. During the simulation, the “doctor” asked the participants whether or not they wanted CPR administered to their loved one. However, the participants heard different versions of the CPR explanation.
Some of the men and women were asked whether they wanted their family member to receive CPR, which had a 10% chance of saving their loved one’s life, if the heart stopped, or if they wanted to issue a “Do Not Resuscitate” (DNR) order. About 60% opted for CPR. However, when the doctors changed the language of the DNR choice to “allow natural death,” only 49% chose CPR.
In some cases, the doctor also talked about his or her own experience and discussed what the majority of people facing similar situations generally chose. When this happened, the participants tended to go along with the majority opinion, and opt for the choice that others had taken.
“Simple changes of words and perceptions about social norms resulted in large differences in CPR choices,” said study author Dr. Amber Barnato, an associate professor of clinical and translational science at the University of Pittsburgh School of Medicine in a statement. “This study suggests that the change isn’t just window dressing — it makes a real difference in the choices that people make. We expect that it also may reduce feelings of guilt for choosing against CPR by making family members feel like they are doing something positive to honor their loved one’s wishes at the end of life, rather than taking something away from them.”
The fact that doctors’ words have such influence on end-of-life decisions highlights how critical the doctor-patient relationship is, and how conflicted family members feel during these difficult situations. Studies have shown that one way to ensure that such critical decisions aren’t being made under duress would be to have conversations, as difficult as they are, about what those closest to you would want early on during a long-term illness, or prior to a life-threatening health crisis. Preparing for such events can make transitioning into end-of-life care, or making emergency decisions, less stressful and less traumatic. Last May, Malene Smith Davis, CEO of Capital Caring, told TIME, “It’s all pre-planning really. People really do cope well if they have a conversation about care with their families early. When families don’t have the conversation, that’s when there’s turmoil because no one is prepared and it’s inevitable.”
Already, says Barnato, hospitals in Texas have asked their physicians to drop the DNR language from their discussions with patients and their families and to ask them whether they would prefer to “allow natural death.” There’s no denying that making these decisions can be challenging, and physicians, she says, should be aware of the role they play in influencing those difficult choices.
The study is published in the journal Critical Care Medicine.